• Dercum's ever mistaken for cancer?

Haviva
to Burt

Dear Dr. Berkson,

I hope you are well and safe.

I was diagnosed at Kaiser with breast cancer. I don't have further information. Without going into much detail at this time, I need to say that certain extenuating circumstances have prevented me from entirely believing them. It is a nightmare at that place. 

I have always had lumps in, or around my breasts. 

I have either, or both Dercum's and lipedema. and I believe they are the lumps near, or in my breasts. Recently, I had a breast exam by my obgyn  because I had been in terrible pain in the breast area from the lumps. I took massive amounts of vit C and ALA and the pain went away from the breast area and moved down my right leg and was so painful I was unable to sleep, or barely walk. By the time I was able to get to the doctor, my breast lumps had softened, or gone and the pain was alleviated. It was suggested I get a mammogram, since it had been awhile. Due to the mammogram's irregularity, it was suggested I get an ultrasound and biopsy. Actually, the doctor who called me after the first ultrasound said,  that my ultrasound looked bad for cancer.  I went in for the biopsy and the radiologist behaved strangely. She showed me a mammogram that was supposed to be mine and said it was "really, really bad." I had the biopsy done and the radiologist was berating me for being unemotional when she told me about cancer . (I had already had a pPnet cancer I fought for a year soon after my husband drowned in the SF Bay while he was out sailing.  But while I was being jabbed with huge needles and having pieces of breast and armpit tissue, she was excoriating me about my demeanor! While I was wishing I had brought my friend to keep me from being attacked, I cried. "She said, I'm glad you finally showed some emotion, I was thing there was something emotionally wrong with you. I was sent off to have another mammogram done, with blood streaming down my arm and on to the floor. Then the tech closed down the machine parts so firmly, I screamed from the pain. 

I do not trust them. Now, the oncologist is refusing to facilitate my request for a second opinion outside Kaiser, which Patient services said I deserved to have. I would get treated  by you, if possible. That would be my top choice.  

At any rate, my main focus here is this question: Has lipedema, or Dercum's ever been misdiagnosed as cancer? I noticed that each biopsy was taken from a sore lump area that still remained in my breast and axillary region. It leads me to believe that there was a misdiagnosis, unless Dercum's or Lipedema and cancer are somehow symbiotic, providing a good living environment for the other.  I was thinking that it could be an interesting case. 

Now, I feel nothing in my breast, or arm pit, except in the areas where the biopsies were taken. I get sudden sharp pain. I cannot understand why the oncologist has a problem with my having a second opinion. 

I have been taking ALA orally, under the tongue several times per day, but I also want to incorporate LDN too. I want to infuse them, but LDN is a Rx, and I am not sure how to get it. I am looking around, but no luck yet.  Why red tape, when a person's life could be in danger? I am not wealthy. I had my money taken by a big, unethical investment firm.         

But, I need something better than Kaiser. If I cannot go to you, any recommendations? (Or a protocol?) Linus Pauling, himself sent me a vit C protocol long ago for my friend's ovarian cancer. Sadly, she would not use it and passed away.

Dear Dr. Berkson,

I hope you are well and safe.

I was diagnosed at Kaiser with breast cancer. I don't have further information. Without going into much detail at this time, I need to say that certain extenuating circumstances have prevented me from entirely believing them. It is a nightmare at that place. 

I have always had lumps in, or around my breasts. 

I have either, or both Dercum's and lipedema. and I believe they are the lumps near, or in my breasts. Recently, I had a breast exam by my obgyn  because I had been in terrible pain in the breast area from the lumps. I took massive amounts of vit C and ALA and the pain went away from the breast area and moved down my right leg and was so painful I was unable to sleep, or barely walk. By the time I was able to get to the doctor, my breast lumps had softened, or gone and the pain was alleviated. It was suggested I get a mammogram, since it had been awhile. Due to the mammogram's irregularity, it was suggested I get an ultrasound and biopsy. Actually, the doctor who called me after the first ultrasound said,  that my ultrasound looked bad for cancer.  I went in for the biopsy and the radiologist behaved strangely. She showed me a mammogram that was supposed to be mine and said it was "really, really bad." I had the biopsy done and the radiologist was berating me for being unemotional when she told me about cancer . (I had already had a pPnet cancer I fought for a year soon after my husband drowned in the SF Bay while he was out sailing.  But while I was being jabbed with huge needles and having pieces of breast and armpit tissue, she was excoriating me about my demeanor! While I was wishing I had brought my friend to keep me from being attacked, I cried. "She said, I'm glad you finally showed some emotion, I was thing there was something emotionally wrong with you. I was sent off to have another mammogram done, with blood streaming down my arm